We received the news this morning that the myeloma is back, and it has entered his brain meninges.  This is extremely rare, and I think even the docs are processing this news.   I have gone on autopilot so under this mode I will convey to you the facts:   It is treatable.   He will either receive a pump (don't remember where... ) that will put chemo directly into his spinal space a couple times a week, or he will get a spinal puncture manually twice a week.   This will be done outpatient.
Some explanation:   because of the blood- brain barrier, the high dose chemo didn't get to his brain during the transplant.   So this is where the myeloma went- -very rare.
 We are looking into options at this point.... most likely he'll undergo a donor transplant soon. We are still at the hospital, but he's coming home today.   He'll get more spinal space chemo next week.

 Words cannot express the devastation our family is feeling right now.  I've come to the realization that we are just chasing this cancer around.   I'm encouraging the doctors to think outside the box with treatment, and Kev and I will seek a second opinion next week from Dr. J in Chicago.

 Please pray for our girls, they are first on our minds always.

These song lyrics come to my mind today:

 The sun comes up, it's a new day dawning.  It's time to sing your song again.  Whatever may pass and whatever lies before me, let me be singing when the evening comes.


 Love to you all,
 Kristin