Friday, May 31, 2013

I have written and deleted this first sentence multiple times today.   My mind is struggling between there being too much to say, and at the same time not enough.

 Last night was a difficult one, as he began to experience further symptoms.   He spent a sleepless night with back and shoulder pain, accompanied by weakness in his arms.   He went to the ER this morning and the transplant doc made the decision to admit him this afternoon.   These symptoms have the potential to be extremely dangerous because it could mean the cancer is growing quickly and putting pressure on his spinal cord.   It could also be side effects of spinal space chemo (which, of course, is what we're hoping for).
 He is going to most likely start radiation tomorrow, although we need the MRI results before we know exactly what will be radiated  (probably it will be very aggressive brain and spinal radiation.... essentially everywhere his cerebrospinal fluid goes- Google that if you want).

He is getting the MRI now.  If the MRI shows that his spinal cord is being suppressed, he will most likely receive surgery this evening.   This is beyond scary, and frankly,  hard to believe that all this is happening.  

I ask you all, yet again, to lay Kevin at the foot of the Cross and lift his name in prayer.   Lord, give us peace and let your will be done.  Your will Lord, because I trust you.   You are rich in  love and mercy.   You have always been there for me, never once have you left my side.   Give Kevin a peace that this world doesn't understand, a supernatural peace that you promise to those who love you.

I will post when we get the MRI results and have a more solid treatment plan.

 Don't lose faith.

 Kristin

 PS-  if you have contacted me with words of encouragement and offers of support, and I have not contacted you back, know that I have read them all and THANK YOU.

6 comments:

  1. I sure hope everything goes fine for your family. I know it can be extremely hard seeing someone you love have to be in pain and not be able to help. I will keep you both in my prayers. I have been though a lot in the last year losing both parents and I have never questioned God. Please keep us all updated and take good care of those girls.

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  2. Kevin and Kristin, we are lifting you both up in prayer right now. We are praying for healing and comfort and peace. We ask for God's love to surround you. Let Him carry the burden. Thank you for keeping us updated even when it's hard to find the words.

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  3. Praying for strength for you and others..
    Recovery for Kev, God Willing.
    Brian Rowley

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  4. Kristin: I have been reading these posts throughout your journey. Please know I am praying hard for you, Kevin, and your girls during this tremendously difficult time. My heart aches for the burden you must be carrying, and I will pray that God carries you when you feel like you can no longer stand, or even breathe. You are in my thoughts my dear friend.

    - Jenny Baker and family

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  5. I am so sorry, Kristin. words cannot express.

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  6. Our liturgy group prayed for Kevin this morning. We hold your precious family close in thoughts and prayer. May God comfort and sustain you through this difficult time.
    Kathleen Herrick

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