Saturday, October 20, 2012

Kevin is almost completely through his second round of chemotherapy.  He and I agree that this round has seemingly gone by more quickly than round one, mostly because we know what to expect now.  We see patterns with his symptoms, blood counts, pain level, and mood based on what day of the regimen it is.  So although the symptoms are still not fun, they are "easier" to tolerate when we know what is causing them and when they'll resolve. 

The most current and aggressive form of treatment for multiple myeloma at this point is combining chemotherapy (Revlimid, Dexmethosone, and Velcade) with what is called an autologous stem cell transplant.  Autologous means that they use your own stem cells (a blessing that we don't need to do a donor search!).  The stem cells are harvested intravenously and done on an outpatient basis.  In order for the stem cells to "take," one needs to start with what I would like to term "a clean slate."  This puts a nice label on what is a nasty procedure:  a very intense form of chemotherapy that essentially kills off your bone marrow.  When the cancer free stem cells are returned to the body, ideally they will multiply in a myeloma free environment.  Unfortunately, this means a 3-4 week hospital stay.  Reserach shows that doing an autologous stem cell transplant extends remission by about 5 to 10 years--that is, if the transplant is deemed successful.  This transplant is tentatively slated for the end of December or beginning of January.  Please pray specifically for a successful transplant.

We are very sad about the news of the extended hospital stay, not to mention scared about this intense chemotherapy.  Thus far he has been able to avoid losing his hair, but this form of chemo will make him very ill and he will lose his hair.  We have made a family decision that we don't want our young girls to see their daddy under these circumstances, so this separation will be an additional strain.  Please pray for our girls.   

Sometimes everything seems so real that it's crushing, and other days we can hardly believe that all of this is true.  I will be honest and admit that sometimes I cry and rage at God.  This all seems so senseless!  Why Kevin?  Why us?  Why our children?  Aren't we good people, God?  But I am reminded that being a follower of Christ doesn't exclude you from suffering.  If that was the case, everyone would want to jump on board and the expression of love that we recieve would be so diminished that it wouldn't be love at all--just a no-brainer deal of a lifetime.  I didn't sign up for that.  The love I recieve is so great that it cannot even be taken from me when devastation rocks my life.  Thank you God, thank you for loving me. 

And thank you all for all of your continued prayers, help, thoughts, kindness, empathy, notes, flowers, cards, and hugs.  I always mention how humbled I am and it continues to be true. 

Love to you all,

Kristin

9 comments:

  1. Kristin,

    Thanks for your candor message. I continuely pray for you and your family for peace and strength during this difficult. God says he will never give us more than we can handle, but, at times like this, it seems a little more than you and your family can handle. Your story is helping others because it is helping to remind me how blessed I am and to the "bad" times in perspective.

    Much love to your family!!

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  2. Kristin, this is so hard to read, and I am sure so hard to write. Life is so fragile. I am glad we are to walk by faith and not by sight. By sight this looks impossible, by faith is it tough but not impossible. God cannot go back on His word even if He wanted to. He does not want to and will not. He will remain with and in us each step. He will carry Kevin the days he cannot walk.Each day we hold Kevin & you up to the throne, and remind Him of Kevins need. He has not forgotten, or placed him third in line. God is good, and we can lean on Him. It does not upset Him when we lack faith. He knows our human condition. He died for our human condition to be able to bring us to the Father..We must and will go on in faith. Kevin loves the Lord, and will survive the transplant. He is one of Gods chosen, and choice children...just like each uof us that know him as savior. God does all things well...Dad Ferdig

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  3. Dear Kristin,
    Prayers continue for Kevin, for you, and for your precious daughters. In such a short time you both are already becoming experts in the treatments and expectations of this unfortunate event that has so rudely entered your lives.
    Your faith gives you strength and, hopefully, knowing there are so many of us that hold all of you in our hearts as you face this battle- gives you some comfort.
    Love,
    Kathleen Herrick

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  4. Dear Kristin,
    Prayers continue for Kevin, for you, and for your precious daughters. In such a short time you both are already becoming experts in the treatments and expectations of this unfortunate event that has so rudely entered your lives.
    Your faith gives you strength and, hopefully, knowing there are so many of us that hold all of you in our hearts as you face this battle- gives you some comfort.
    Love,
    Kathleen Herrick

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  5. Prayers for all of you:) My girls were about the same age when my husband and I both went through our treatments.(3yrs old and 6months)Kids are pretty resiliant(sp?)Our girls always brightened our day and gave us that much more reason to fight:) HUGS~Tammy Harris-White

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  6. "But I am reminded that being a follower of Christ doesn't exclude you from suffering. If that was the case, everyone would want to jump on board and the expression of love that we recieve would be so diminished that it wouldn't be love at all--just a no-brainer deal of a lifetime. I didn't sign up for that. The love I recieve is so great that it cannot even be taken from me when devastation rocks my life. Thank you God, thank you for loving me." This statement really grabbed me, especially knowing what you're going through. You said it brilliantly! Thank you for saying so eloquently what is so true!!

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  7. I'm asking Santa for Kevin to get billions of healthy, regenerated stem cells for Christmas this year since that'll time out about right. ;) Thanks for sharing. I continue to think of all of you and hope for the absolute best! You are an amazing person, Kristin. Hugs to you all!

    Deb Kushion

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  8. I continue to be encouraged by your determined faith. And continue to ask our Jesus to enter into each moment with you.

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