I have written and deleted this first sentence multiple times today.   My mind is struggling between there being too much to say, and at the same time not enough.

 Last night was a difficult one, as he began to experience further symptoms.   He spent a sleepless night with back and shoulder pain, accompanied by weakness in his arms.   He went to the ER this morning and the transplant doc made the decision to admit him this afternoon.   These symptoms have the potential to be extremely dangerous because it could mean the cancer is growing quickly and putting pressure on his spinal cord.   It could also be side effects of spinal space chemo (which, of course, is what we're hoping for).
 He is going to most likely start radiation tomorrow, although we need the MRI results before we know exactly what will be radiated  (probably it will be very aggressive brain and spinal radiation.... essentially everywhere his cerebrospinal fluid goes- Google that if you want).

He is getting the MRI now.  If the MRI shows that his spinal cord is being suppressed, he will most likely receive surgery this evening.   This is beyond scary, and frankly,  hard to believe that all this is happening.  

I ask you all, yet again, to lay Kevin at the foot of the Cross and lift his name in prayer.   Lord, give us peace and let your will be done.  Your will Lord, because I trust you.   You are rich in  love and mercy.   You have always been there for me, never once have you left my side.   Give Kevin a peace that this world doesn't understand, a supernatural peace that you promise to those who love you.

I will post when we get the MRI results and have a more solid treatment plan.

 Don't lose faith.

 Kristin

 PS-  if you have contacted me with words of encouragement and offers of support, and I have not contacted you back, know that I have read them all and THANK YOU.

We received the news this morning that the myeloma is back, and it has entered his brain meninges.  This is extremely rare, and I think even the docs are processing this news.   I have gone on autopilot so under this mode I will convey to you the facts:   It is treatable.   He will either receive a pump (don't remember where... ) that will put chemo directly into his spinal space a couple times a week, or he will get a spinal puncture manually twice a week.   This will be done outpatient.
Some explanation:   because of the blood- brain barrier, the high dose chemo didn't get to his brain during the transplant.   So this is where the myeloma went- -very rare.
 We are looking into options at this point.... most likely he'll undergo a donor transplant soon. We are still at the hospital, but he's coming home today.   He'll get more spinal space chemo next week.

 Words cannot express the devastation our family is feeling right now.  I've come to the realization that we are just chasing this cancer around.   I'm encouraging the doctors to think outside the box with treatment, and Kev and I will seek a second opinion next week from Dr. J in Chicago.

 Please pray for our girls, they are first on our minds always.

These song lyrics come to my mind today:

 The sun comes up, it's a new day dawning.  It's time to sing your song again.  Whatever may pass and whatever lies before me, let me be singing when the evening comes.


 Love to you all,
 Kristin

This is an urgent call for prayer for Kev.

On Monday, he began experiencing migraine headaches off and on. They continued to persist today, so the doc ordered a CT scan.   They found swelling in the back of his brain. It could be an infection, meningitis, or myeloma.   Please pray (and ask your praying friends) through tonight.   He is being admitted to the hospital this evening, so hopefully we'll know more tomorrow.

This first had to pass through God's hands, so let's trust Him.

 Kristin